Thursday, February 24, 2011

A String of Letters

and most of them NOS.

I haven't written so much about the difficulties Benjamin has been having lately... I guess I wasn't really sure where to start. But he hasn't really been happy, and wasn't making progress at his school. So after thorough investigations on both sides of the Atlantic, he now has a diagnosis, of sorts. But the letters all seem to roll together.

ADHD - is the first and clear winner. Or ADD since the H isn't so clear. This one we're all sure about, and his impulsivity, distractability and creativity make it a sure thing.

PDD-NOS (or GUS-UNS in Swedish) - for Pervasive Development Disorder - Not Otherwise Specified (and just to show that I know what it is here - Genomgripande Utvecklingsstörning - Utan Närmare Specifikation). This one we're less sure of, but it places him somewhere on the Autistic spectrum, closer to Aspergers, but not really... just imagine somewhere under a very large umbrella of social challenges. If you take his fantasy stories as a specific interest, then he probably falls out somewhere on the spectrum... but exactly where is a matter of debate.

Mood disorder - not otherwise specified - is the other part. He hasn't been truly happy for a long time, and hasn't found an interest in a while - other than TV. I wish it was easier - we have two children who are surprised at how wonderful their lives are, and one who is the opposite. What to do...

So somewhere in ADD-ADHD-PDD-NOS-land we have to find a way to enjoy our lives as a family. Some initial thoughts...
  • I have never been happier with my marriage and my husband. Every book I read has a chapter about marital relations, and though this is challenging, David's wisdom and willingness to see things from other perspectives... well, I can't imagine how lucky I am to have found him, and how thankful I am that he is my husband (13 years now).
  • Sweden's system takes some sorting out, and the motivations and goals are not at all like what I would imagine private practice to be. We're working on it.
  • Benjamin has changed school - hopefully for the better. Somehow, a school with 1:1 ratios should be fantastic. But he's still not reading, nor does he see the need.
  • We're working down the pharmaceutical chain - and I now know more brand names and active ingredients than I ever expected.
So wish us luck - it is bound to be a bumpy ride...

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